LONG was proud to put on green socks and host 3 teams for The Tradition – St. Paddy’s Day Golf at The Golf Club of Bradshaw Farms.
When you participate in ‘The Tradition’ you help bring awareness to Neurofibromatosis in honor of Jack O’ Brien Burke. Jack is a teen fighting Neurofibromatosis, also referred to as NF. NF is a rare genetic disorder that causes tumors to grow on nerves that can result in cancer or heart problems, lead to blindness, loss of hearing, learning disabilities or bone and mobility issues.
Jack is dedicated to fighting for a treatment or cure for NF for all children affected by it. The teen brings awareness to the disorder through Cure NF with Jack, a nonprofit started by Burke and his mother, Beth O’Brien, to fund research for treatment or a cure.
The Burke family and Cure NF with Jack have raised $3 million in private donations as well as through golf tournaments and fun run fundraisers over the last 10 years.
LONG is pleased to support Cure NF with Jack and their mission to find a cure or effective treatment for NF.
To learn more, visit: http://www.curenfwithjack.com
#endnf #iknowafighter #imwithjack